Abbie lou
DoppleMe

I am currently writing some stuff about living with Autism, my son has Autism and cerebral paulsy, and learning difficulites, wondering if anyone, using this site has a child with any disabilites, and needed any advice or help, or if there was anything in particular they would like me to write about.

Posted on: May 22, 2014 - 12:52pm
Anna
Parenting specialist DoppleMe

Hi Abbie lou, I know that we have people online who have children with disabilities, so it will be interesting to hear from others what issues they have faced or what they would like to learn more about, so that you can research and help.

Posted on: May 22, 2014 - 6:40pm

Abbie lou
DoppleMe

Thanks Anna yes it would. I know that it really helped me to talk to people in similar situations when my son was little, and even now It good to talk about stuff that I still go through with J.

Posted on: June 5, 2014 - 11:26am

Sally W
Parenting specialist DoppleMe

Hi Abbie lou, i think any information about disabilities would also benefit parents that do not have children with disabilities, until i had a friend with a child with disabilities i did not truly appreciate how much more difficult parenting can be, once i had more information and understanding i felt more able to support my friend, i remember at first i kind of dodged having contact because i did not know what to say, i still feel pretty bad about that!

Posted on: June 6, 2014 - 10:03am

sparklinglime
DoppleMe

It surprises me how many people have not heard of autism/Asperger's.  My new friend had never heard of it.  He's quickly come to understand it though and as he works with aircraft, and my third child who is now 18 but is plane mad, has deep meaningful and very technical discussions about Hawks!  He can't get over my son's knowledge...  

Posted on: June 6, 2014 - 11:25am

Abbie lou
DoppleMe

Hi Sally I wouldn't feel bad. I didnt know what either of my sons disabilities meant untill he was diagnosed. It tends to be a learning curve for everyone involved. Sparklingtime really yes like I say I had never heard of autism until my son was diagnosed. But that was 15 years ago I think people are beginning to hear of it more. Unfortunatly the film  rain man is what a lot of people think of when they of autism, have you watched that film? What did you think if so? . Your new friend sounds perfect person for your son to know it sounds like? what is son doing now he is 18 is he still in education ? 

Posted on: June 6, 2014 - 12:32pm

sparklinglime
DoppleMe

My son is fantastic at art, so is doing BTEC art and design at college, with fantastic lecturers who have done all they can to keep him going. 

They too have learnt more about autism/Asperger's and on how my son's head can work.  

So long as my son passes this year - and so far so good - then he will go on to the second year.  I don't look too far ahead...  He is talking about doing an apprenticeship to work with aircraft at the local RAF base, so somehow I will need to get him to pass his maths to be considered.

All challenging.  I actually can't see a point where it will be anything less than challenging...

Posted on: June 10, 2014 - 2:46pm

Abbie lou
DoppleMe

Hi sparklinglime

Sound like your son is doing so well, you must be really proud. Great he has such fantastic lecturers.

I myself try not to think to far into the future, (all bit scary!) and yes I to wonder if it will ever become less challanging, so I try to plan a little and take one day as it comes !

I'm assuming getting your son to pass maths is going to be a challenge, will he get extra help with this? and will he need a certain grade?

Is you son's behaviour challanging at college?

 

Posted on: June 12, 2014 - 10:49am

sparklinglime
DoppleMe

One day at a time is my motto too.  He's been ok at college, so only not so good at home.  Thank goodness.

Posted on: June 13, 2014 - 9:23pm

Abbie lou
DoppleMe

That's good all is ok at college. My son goes to college on a friday, every Friday he tells me he does not want to go, I struggle to get him to go in, once through the doors, he starts saying hello to everyone with a big smile!

When I pick him up his support worker tells me what a great day he has had, and then he proceeds to tell me to never take him to college again!

Are there any particular problems you face at home?

 

Posted on: July 3, 2014 - 2:21pm