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Great keira at least your going to giving it a go, it is steps like this that get you further down the road to a better life for you and your children
Hows things honey x
Hi kiera, how are you? Hope you are enjoying the Freedom Programme. Is it tomorrow your appointment with the CBT lady?
Hope all is ok.
Kiera how's things ?
hi im sorry i avnt bin on here i had no internet at all, hadnt paid my bill as my card expired, sorted now and paid, i am okx
ive had call from lady from domestic violence service, askin how i am and doin risk assessment on my safty for me and kids, i asked wheter ex is doin the perpertartaors course, so far she said he a s dun 5 sessions, god i hope he fails in wot he as to do, cos dont want him to av any access at all, woman even asked did i want to move, i said no im fine, i av er number if i want to chat, she rang sayin after court i stil av support if i need it which is gud, x i thjink tht when court over with tht everyone forgets bout u but they dont do theyx
Hi kiera, glad to know you are ok, that is fab that you still have that support. It is pretty unlikely that he will do the whole perpetrators' programme.
How is half term going? You mentioned on the other thread about your little girl sharing your room, is there space for her to have her own room or is that your eldest's room when she comes?
Hi keira i'm glad your back and o.k too.
hi louise my eldest son ad another siezure last nyt, he as ad 3 this month now, he is on higher dose medication now, so upsettin, my little girl got so upset, my other son wasnt ere ,i cried cos wish he didnt av epilepsy, he as really bit his tongue again, i just feel for himx
Oh i'm sorry your son has had another seizure keira, it's not nice to see your loved ones like that and can be scary for younger children to witness.
How is he today? are they looking into what triggers his seizures?
hi he as ad tests dun and they av ruled out a tumour, they dont av clue really, its my little girl tht wears me down, she bin very naughty today, im actualyy payin tomz mornin for er b in nursery all mornin so i get break,she screams paddys, throws toys, hurts the dog, she took fish out tank, never ends, at nursery she good they say, must jsut b me
Hello kiera I am so sorry to hear about your son, how scary for you all and disappointing that they cannot tell what triggers it.
Have a look at this website (click) It has a section on for children and if you look at the top, there is info for parents too.
Thinking about your little girl, children often behave well when they are at school or nursery and not for us. She is three now and can understand more things. Give her a lot of reassurance about your son, say things like "X was poorly but then he gets better, it's ok" and if you STAY CALM YOURSELF this will help.A lot of the "naughty" things she is doing are for attention, and I don't mean that in a bad way, it is because she is wanting more good, calm attention at other times, try to set aside some time every day to sit with her and play games, read stories, cuddle, say I love you. Once you have started doing more of this then we will help you with the next stage. It takes a while but we can support you.
Also you might think about buying this book here for your daughter and reading it with her?
thank you for reply, the website is gud bout epilepsy,and im gona order tht book,
Good for you, kiera, you have a lot going on at the moment, it feels as if it has come all at once for you, just when you thought things would become peaceful. One step at a time, the book looks really good for your daughter 
u no ive had dream bout my ex twice now, wonder why, and his new girlfriend was in it, and his family, even tho i never met them, mad
When we have dreams, it is our brain's way of processing things and making sense of things and deciding what to keep (in our longer-term memories) and what to get rid of. I think the dreams are a really positive sign that you are not feeling so stuck and are beginning to process all that you've been through
hi well my son ad 2 siezures yest, one at his nanas and one at ome, ad go hospital, he as dislocated his shoulder again, so he as sling on next 4 weeks, so worryin, so upsetin, feel sorry for my son, he is off school today restin, and he cant do paper round thank god, i cried last nyt, wish he didnt av epilepsy. rang council see if they fit shower for safty reasons,
Hope your sons ok Kiera x
Another one, poor lad, and poor you with all that worry. Did you get to speak to the consultant today? I know you keep saying you wish he didn't have epilepsy, and I wish he didn't too, but the fact is that he has got it and (unfortunately) it might mean you having to fight a bit to get the best treatment for him. I am sure you agree that it is not acceptable for him to have so many fits, they need to get his medication better adjusted. Does your son have any indication that they are coming on? Does anything seem to trigger them, such as stress?
hi spoke to consultant he as now on 700 mg instead of 5oo mg, he says nothin we can do, until medication ryt, its so frustatin, well he just looks dazed bfore he ad fit ,my son says no sigh, and not stress, someones cumin out from council seein bout fittin shower for me for my sons safty
Epilepsy is usually triggered by something, it can be flashing images, is your son playing alot of xbox/psp games?
I was going to ask if they had made any suggestions about your bathroom, have they said anything about him bathing unattended?
hi few times we av bin sat in front room in middle of conversation and he look dazed and start fitting, nothin can trigger it, it out blue, he does go on laptop and games, we cant wraphim up in cotton wool, my son gets on with it and says if he as fit then he as one, and i only put bit water in bath, and i av sit in next room til he gets out, and keep shoutin to check hes ok,
No you don't want to wrap him up in cotton wool and i'm sure at 15 he does not want to make to much of it.
Only mentioned the games etc as this and stress triggers my friends sons fits, she noticed it seemed to get worse when he was studying for exams/tests and would then spend his spare time playing games, he is much better when this is limited. It does seem to look like it can come out of the blue, but usually beforehand there has been some sort of build up.
Here is a site you might find useful it has an app you can download to your phone so that you can keep a seizure diary.
That's a great idea, Sally, did you have a look at it kiera?
hi yes ive looked at it, the siezures do cum toytaly out the blue, thts the unpredictablity of avin epilepsy, my son doesnt feel anythin bfore he aas fit, but i no cos he looks all dazed 1st then he as fit,
It is good that you have noticed that there is some sort of brief warning, is the consultant getting you any support in managing the Epilepsy, other than getting his medications sorted?
Will you have a go at the seizure dairy?
well im shook up, was on facebook spkin to woman bout nyt out, she sells tickets and runs a minibus, then out blue she message me sorry ur ex and said his name my good firend and his girlfriend av got seats on minibus, so not good idea u cum and put lol, i cudnt berlieeve it, ive closed my account for good now, my ehart poundin, im thinkin god i cnat go anywhwere, it wa blackpool, im, thinkin wa sit really tht woman was it my ex i was spkin to again, i seriously dotn trust anyoen, and dont beieve anyone, liek hes stil controllin me, i am shook up again, best i just stay in, i hate him so much,
feel paranoid again, liek i cant go anywhere, wish i lived m,iles away, thinkin was it him al along again iw as spkin to, i cant trust anyone can i, even on ere now im paranoid, why hell shdu i stop doin wot i wnat cos of him, hes a woman beatin thug and cheat , i dotn wnat him nr my little girl, dotn trust him at all, and on fb sayin hes bookeds seat with his girlfriend who he origanly was with, how can she b with thug like tht, im drinkin my malibu now cos upset and p***ed off
It sounds like a good idea not to go on Facebook kiera, it does seem to cause you a lot of upset and problems. As for why that woman is with him, we know all too well how people get trapped in abusive situations, it happened to you and to many women on here.
Regarding going out, it is better to do so with people that are well known to you and that you trust rather than on a trip with people you don't know. I remember you were saving up for your holiday after your last night out and that seems a good thing to concentrate on right now and stick to the people you know.
yes louise ur right thank you, im stayin in now til my birthday in feb with my eldest daughter, yes i am savein, gona stick to who i no and stay in,but stil annioys me why shud i cos of him,
Totally agree, why should you have to tailor your life to avoid him? but actually you will be the winner out of this when you jet off to Spain in the summer, heh heh
Tell yourself your not staying in because of him its because your saving for your holiday and that's true!
How are you today? What you up to?
Have you done any xmas shopping yet? X
Or maybe I assumed you were staying in cos you saving fore your hols sorry if that's not the case x
hi my son ad another siezure last nyt, his shoudler cum out agian and he as really bit his tongue, so upsettin, next door offered av kids while i go hospital, i got bt 1am, my mates fella picked us ujp, gud job cos i did nt av money to get ome in taxi, u no its a tenner every time to cum ome, im n ot workin how can i keep payin for taxis, my mu as paid last few times, and it worries me wot if next tiem he as siezure and i av no1 to watch kids, wot then and i av go hospital, worrries me so much, my son shoulder wudnt go in, took 2 nurses and loads gas and air to pop it bk in, do u think i cud apply for carers allowance, am i entitled to it he is avin more sizures now, i dotn leave him on his own, im scared to, i no sumone from council is cumin to do risk assessment to see bout avin shower fitted,
Hi kiera, you need to apply for Disability Living Allowance for him again, been talking to you about that on the other thread. In the meantime, find out at the hospital if there is any refund for attendances if you are on benefits. It seems to vary but some places will at least give you the money you would have spent on car mileage (not the taxi fare but at least a bit of help) and some will accept that there is no other way to get there.
You need to ask the hospital for a form called HC1, you fill it in and send it off and you get a little vertificate back which tells you how long it lasts and what you can get help with BUT you do have to pay out in the first place and get back whatever you can get from the hospital so you NEED to have emergency money in the house in the first place, at all times.
If your hospital does not have any forms you can phone the NHS forms Line on 0845 610 1112
would i b able to claim dla tho, not sure
we go hospital in the ambulance its comeing bk, was 1am when we got ome last nyt, lucky my mates fella picked us up, wud my son b eligable for dLa
It's hard to say definitively, kiera, you have to apply. Common sense says yes but then common sense does not always prevail. You need help with the form though as it is a hard benefit to get DLA
Get the hospital form anyway as this is a separate issue
By the way, although very upsetting, it does seem to happen that people with epilepsy have a lot of dos close together until the medication is stabilised, very very disruptive to all your lives though!!!!!!!!!!!!!!!! and my heart goes out to you.
You just need to fill in the forms correctly eg got help with them it will be worth it xx
Hi keira
Take a look at this information about DLA you can also contact Turn2us on 0808 8022 000 they can help with letting you know what benefits you would be eligable to claim for.
sorry bout replyin after ages but feel down, dont no why, im on my own again, i cud gon my mates but decided not to, drinkin my glass cava and watchin corrie, but i feel down, dotn no why, sorry again
and my ex as indirect contact thru 3 rd party, but avnt heard anythin off my solciter, ex musnt got our dwter anythin for er birthday in oct and exmas, so he asnt gon ahead with indirect contact
Hi hun how you feeling today?
what you up to?
Im guessing your pleased he didn't send things for your little girl?
Hope your ok its a bit lonely isn't it i feel same, but we got new year to celebrate x
hi hun thanks for replying, i jsut felt down i ad gud cry, avnt cried in while,x
Sorry to hear you were feeling down kiera, but a good cry can be very beneficial sometimes. Although it is upsetting that he has not sent any gifts for your daughter in another way it stacks things up against him ie he is allowed indirect contact and yet did not do this. I would be inclined to keep writing these things down just so you have a record of the facts.
Hope you have a better evening tonight, it is still very windy and rainy so it feels as if a snuggle up would be a good idea.
hi louise well ive met sumone, we are in relationship, we av clicked, really like him,see how it goes, told him bit bout my ex, he was shocked bout what he ad dun, see how it goesx
Hi keira, is this someone you met over christmas? i remember you mentioning that you had met someone awhile ago but thought that had ended!
Your right to take things slowly even though things have clicked, take your time to get to know him.
How is your sons shoulder?
How's things?
hi well made appointment with lady regardin congitive behaviour therapy, next sat morning,its 30quid for 50 mins so not cheap, but il see how it goes, meant to change way u think, after wot ive bin thru it shud help,x