hello
And I didn't get a thank you from the lady.
I won't tell you all about the first altercation we had on the train at the weekend, there were four of them that time! Luckily sadsy got off the train in one piece.
Hi, I am a new member of forum. Would a newcomer be warmly welcome here? Good day you guys!!!
(note from Moderator: not a genuine account and publicised website links, account blocked)
Hi kathleenp980
Yes, there is always a warm welcome here.
I hope that A has had a good night. I so hope there is good news today.
Hello sadsy
Hope so much that A will now make a good recovery and be pain-free. It is ridiculous to have visits with her restricted at such a traumatic time.
Try not to get into any argy bargy with anyone else though, sadsy, you have enough to deal with and although peoples' behaviour may leave a lot to be desired, just let them get on with it and concentrate on A
Thoughts with her, and you too of course.....
Sorry Louise,
I'm about to tackle the social worker by phone. My strength is returning.
Please email me with whether the blocked account above appears to be targeting me or general users of onespace?
If it is me then I will have to change identity and thread as those that mean me harm may have found me.
Hug sy
Note from Moderator- please do not worry, no reflection AT ALL on you sadsy, we get quite a few spammers, on all the threads, usually I can just delete them and no-one need ever know but was worried that I would lose posts on this thread subsequent to the rogue post so could not delete it completely this time, please ignore it- Louise
Hi Sy.
I hope things go smoothly at the hospital today between you and L. (Also on the train) You're under a great deal of pressure, but the altercations on the train are not good, and could lead you into serious trouble. Stay calm, and stay clear!!!
Is your Mum going with you today? I'm pleased that you'll meet your Dad again, and half sister. You can re-build your relationship with him, but only if you both try.
Hope A is comfortable today. Have you phoned the hospital this morning?
Take care, stay calm, and of course eat!
x
Ooh yes I forgot to say what good news about your dad!
Sadsy, I've just read your recent post about ringing the Social worker. Of course you're upset about yesterday, but I would hate it if they stopped you even going to the hospital to see A. Tread carefully Sy.
I'm sure the blocked account has nothing to do with you. I've seen others like these on other threads. Don't worry! The moderators will sort them out.
x
Thanks alisoncam, all sorted and I have put a note to sadsy on his post that asks about the blocked account
i'll let him know about that account, he may not have time to read it & be worried.
He will probably be leaving soon. His Mum won't be going today as she is traveling back but will be there tomorrow.
All your words of warning to him are echos from me too, sometimes it falls on deaf ears & sometimes not. it is beacause of how badly sadsy has been treated, he now finds it difficult to let things go over his head & feels that when people are have not behaved appropiatly or doing thir job properly then people should tell them & not sit & do nothing. The thing is he has a point, we are all becoming walking robots in this world & we put up & shut up but we also have to survive & sometimes that means we have to let some things go in order to & sometimes we need to fight.
Regarding people on trains it is never a good move to challenge people we don't know, it has lead some that have to their deaths! sigh....lets hope he has his i pod on & eyes shut on train today, lol
Hi Pansy. Completely understands why Sy reacts. I just wouldn't want everything going against him when all this is going on with little A. L has shown she can and will make things extremely difficult for him. I cannot believe she called a Social worker yesterday, their little girl has gone through this ordeal of an operation, and still she is fighting Sy.
Fingers crossed that things go smoothly today for him and most of all A.
x
er. hmmm. well.
had another altercation today. Yes. I can't help it.
A motorist was mouthing something obscene to me at the petrol station and I went to ask him what he wanted to say to me and I got a torrent of abuse from him. Then his girlfriend got out and abused me even more.
I took a picture of the number plate and told the petrol station guy to call the police. As I've really had enough of being abused.
I spoke to the police and gave details over the phone. However they had sped off.
Last voicemail I heard was that Police were having trouble tracing the vehicle. I haven't time to chase it, I'll let the police do that, it's their job.
A.
She had a rough day, she was manhandled to have a fitting for a support corset, which with a 10" cut up your spine must have been very painful. Then she had her spinal drain removed which had her in tears. This was the point I arrived.
Then I found out she was having another general anaesthetic for an MRI of the brain and spine to make sure the one that was removed was the primary. It took 1.5hrs. All results back at end of the week. I stayed for the recovery from general anaesthetic.
A was very cross by the end of the day and wasn't having any more of it.
There is a lot more. But so tired. I felt I had to leave becuase I was over my time limit and was in tears as I went. So nurse said don't leave like this and go back in with A. I said L won't like it. But it was arranged and I watched Starwars lego series on tv with A.
I'm not getting any more fluffy gogos as she doesn't like them as much as the metallic ones.
Walked from Charing Cross to save money, but arrived in sweaty heap. Did not walk back as was dark and I did not know the way very well.
Very tired.
sy
The poor little mite Sy. Am glad the nurse got you to go back though.
Hello sadsy
Poor little A, she is having a really rough time of it too. As for you, you must be exhausted. Is your mum back today? What are the plans?
Poor A. What a horrible time for her.
What a lovely nurse.
Thinking of you very much.
Morning, I don't have to rush off for gogos today.
Have spoken to ward and nothing major scheduled for today. Will visit from 2-5, have informed L by text.
Will call social worker dept in a moment. I will record the call.
Will call Cafcass in a moment and record the call, she never called back as assured by rep at office.
Nanny coming today. So altercations unlikely.
Hands are shaking a bit, think I am pushing my body a bit hard with low calorie intake and long periods without fluid. I'm not young enough to take it like I used to.
My dad has called and he is staying with my half-sister with me for one night. I'll let them know they will have to sleep on floor and fend for themselves a bit for food etc.
OK, best do difficult calls then I can have some shreddies.
Still no number for Lk to be contacted.
Both social workers are hiding at Great Ormond Street and suddenly become unavailable.
And so they should.
Glad Nanny is coming today.
Cafcass Ilford are in hiding too,
My complaint is being dealt with by head of services and I can only contact them by solicitor.
Will have my shreddies now and run a bath.
It might be a good idea to just forget about the lot of them, sadsy, have your bath and some food and then go and see your little girl. She will be glad to see Nanny too.
How was A today Sy? Do you get to see L when he is visiting her? Hope A was comfortable and pleased to see her Nanny. Are they still letting her go home on Friday do you know?
x
Message removed by moderators
Oh Sy. You do seem to have some trouble this week!
How was A yesterday? Are you back there today?
Hello sadsy
You and A are very much in our thoughts and we are wishing the best recovery possible for your lvoely little daughter
I hope there is good news with A today, and that you manage to have a chat with Lk to catch up with him.
Thinking of you.
Morning everyone.
A was much better yesterday.
Hug sy x
Glad A was much better.
How is Lk coping?
I am glad to hear the news about A, too.
No contact with L for 2 weeks. No idea how he is. I think he is with the woman who attacked me after court. The phone is not answered on the number I have and I have texted ex for a number to contact him on but, as always, no reply. Solicitors are tackling it.
About to call the school now to see if he is attending or not and if he is, how he is.
Hug sy x
Hi Sy. Really pleased that A is feeling better. Hope you manage to speak to Lk soon.
As for leaving us Sy, stick to the rules and you'll be ok here. We all know you are having a rough time lately, what with A, and everything before all of this took place, but stay calm and focus on the kids for now. Deal with social services, solicitors and everything else perhaps once A is out of hospital, and you're not tooing and froing to the hospital.
Thinking of you all.
x
Yes I agree with alisoncam, don't take on too much at once, and we all want you to stay here with us!
I have such terrible trouble sticking to rules. I'm still not sure what they are. If I read them, they just go straight through me and don't stay.
A. had official all clear on the brain/brain stem and spinal post-operative MRI. So a big hurdle done with.
For some reason the physio chose me to go with A. and have a walk down the corridoor and do some steps on the stairs. A. did get an instant and worrying headache as she walked where she kept banging her head with her hand to get rid of it. It made me shudder. never seen A. do that before.
Tired, need to sleep.
sy
Hello sadsy
So glad that they have got a clear MRI for A, they have to cover all bases, I know, but how scary it is waiting to hear the news. Great that she has had a walk too, and not at all surprising to me that her head hurts after what she has been though.
You must be exhausted with all the travelling, and worry is something that is very tiring too. Are you managing to eat OK?
Bless her.
So glad there has been good results with the tests.
hello ppl,
have called the ward and all they are waiting for is a poo. Then she will go back to the flat. She wasn't very keen yesterday at going back.
Am a bit concerned as I haven't really received any info about urinary or stool damage on the spine from the operation and whether all is ok in this regard yet.
The headache thing was very odd. It was at the side of the head and meant that she kept hitting her head to get rid of it. Would a blood clot show on the MRI? I don't know. A stroke would be disasterous.
I don't know any medical details, all I know is that she is in one of the best children's hospitals in the country and you just have to trust them to do their level best for her.
This is just a thought, but a side effect of an epidural can be an awful headache. I wonder if the fact her spinal cord has been involved here if that may have led to a headache.
It is a fantastic hospital though, and I do agree with Louise.
I'm also thinking that if they're waiting for her to 'pass a stool' then her waterworks must be working ok...
Glad to hear the good news about A. Like adults, I'm sure she will make a quicker recovery in the comfort of her own home.
x
Saw A again today,
They have given her absolutely everything to make her poo. Once she does she will leave.
Had fun with Clangers and Wombles DVDs and a playmobil mini-sub for her gogos to go exploring in.
Also gave her half a chocolate waffle biscuit, which was meant to be secret, but the mess on her t-shirt would tell all.
At moment having tussle with ex on texts. Unusual for her. I have said A grandad and aunty from Canada would like to visit at 10am. It's when their train comes in to Euston.
I did reasonably well at the social worker complaint meeting. I was not too dim. I was firm, but not attacking or malicious. Just right I thought. My performance review sessions with my boss when she was trying to get rid of me set my tone.
It looks like ex is in a paranoid state and will block my dad and half-sister from visiting tomorrow. I'll try the social worker office. If they advise not we will go on our way. It's only 15 min walk from Euston. Bit of a shame.
I am treating myself to a tea now.
I checked with doctor today and he says no to urinary or bowel damage to spinal cord. So am pleased.
Hello sadsy
Great that they think there is no damage from the op, but they had to warn you beforehand so that you were fully informed.
I am sure there will be some "movement" today, she is probably a bit scared about going in case it hurts.
Hope it goes Ok with your dad today, make it a good meeting and something important and special to remember
I do hope today is full of good things.
Brillian news about A. Lets hope she can get back to 'normal' now and be pain free. Poor mite.
Great news Sy.
x
Hi Sy,
I'm so happy for you that A has come through her operation. I'm sure that having you there for her has made a huge amount of difference.
Thinking of you.
HelenT
Hi Sy. How is A getting on? Have you been able to speak to Lk? Did everything go ok with your Dad? Really hope so
I do hope you had a good weekend.
Dear alisoncam/sparkling/helen/louise,
I've just had verbal confirmation that A's tumor is a type 1 tumor. Tumors are graded 1-4, with 4 being the most aggressive.
There is a multi-disciplinary meeting tomorrow which will decide which, if any, further treatment is necessary. Possibly radiation treatment to remove any residual cells.
My dad and sister have left now.
It was nice to have a family for a while.
hug sy
Altercation,
yes, yes I did have an altercation at 6.45am on the train. A banker was sitting on the aisle seat pretending to be asleep. I lady signalled to me could I wake him.
So I woke him and said she would like to sit. Then I said it might be better if he wished to sleep to be next to the window so others can sit.
He then put his head down on table and said "f-ing tosspot". At which point I pushed his head and warned him not to swear at me. He tried to intimidate me by going eyeball to eyeball, but he saw nothingness in my eyes and sat down. I told him he was a selfish man.
Then I went on to Ormond Street to take my terrified daughter down to theatre standing with the woman who is hell-bent on my destruction and pain.
I don't know how i carry on.